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The Congressionally Directed Medical Research Program Adds Dystonia to the List
We have seen many opportunities to advance research in the field of spasmodic dysphonia with the funding of the first NSDA independent grant and the establishment of the Dystonia Coalition. Now, we add another funding mechanism for dystonia/spasmodic dysphonia research!
The National Spasmodic Dysphonia Association, a proud member of the Dystonia Advocacy Coalition (DAC), is pleased to announce the inclusion of dystonia on the list of diseases eligible for funding through the Congressionally Directed Medical Research Program (CDMRP). This achievement, reached after several years of tireless, collaborative efforts by the advocates of the DAC, now allows for members of the dystonia research community to apply for funds in support of their work. In particular, we would like to thank Jim Anderson from St. Pete's, Florida, for his efforts in working on this issue and assembling a team of people to ensure dystonia, and specifically, spasmodic dysphonia, would be included in this funding.
The Congressional Directed Medical Research Program is funded through the Department of Defense via annual Congressional legislation known as the Department Appropriations Act (the support is in response to requests by consumer advocates and disease survivors). CDMRP will issue a program announcement for 2010 funding opportunities, including dystonia.
NSDA joins with the other DAC member organizations, the Benign Essential Blepharospasm Research Foundation, DySTonia, Inc., the Dystonia Medical Research Foundation, and the National Spasmodic Torticollis Association, to advocate for all persons affected by dystonia and supports a legislative and policy agenda that meets the needs of the dystonia community.
Organizational members of the DAC will now work to promote this program to the dystonia research community to help advance dystonia research.
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